- EAN13
- 9782493373281
- Éditeur
- Fondation Ipsen BookLab
- Date de publication
- 06/06/2023
- Langue
- anglais
- Fiches UNIMARC
- S'identifier
Livre numérique
-
Aide EAN13 : 9782493373281
- Fichier EPUB à mise en page fixe, avec Marquage en filigrane
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Arno is an adorable little sparrow full of energy. But one day, the wind told
his parents that Arno had a disease that would take away the beautiful things
he had acquired over the years.
However, despite life’s injustice, Arno's smile remains. His smile is an
eternal memory of a premature flight.
ABOUT THE AUTHORS
Sonia Goerger is a medical secretary who has been welcoming and meeting many
genetic patients for several years. This inspired her to create the “Children
of Genetics” series of books for children. The books in the series deal with
the difficulties that patients may experience in their everyday lives, using
simple words and endearing characters. To bring them to life, Sonia Goerger
collaborated with Christine Juif, a clinical psychologist who assists patients
with genetic diseases and their families during the diagnostic process.
A graphic designer for several years, Elodie Garcia is an author and
illustrator of children’s books and comics. The delicacy of her line allows
her to approach, in a gentle way, difficult subjects. By illustrating the
Children of Genetics book series, she hopes to help families facing rare
diseases.
The Association for Research in Genetics and Support for Families and
Professionals of Dijon-Bourgogne (ARGAD) is a non-profit association under the
1901 law, created in September 2010. ARGAD engages in numerous activities: •
Improving reception and care conditions for patients with rare diseases in
Burgundy, within the Genetics Centre of Dijon CHU; • Raising awareness among
health professionals in the Burgundy region, and among the general public
regarding rare diseases; • Contributing to a better and improved training of
health professionals involved in rare diseases; • And, supporting clinical and
biological research activities in the field of genetic mutations associated
with abnormalities in development and intellectual disabilities in Burgundy.
his parents that Arno had a disease that would take away the beautiful things
he had acquired over the years.
However, despite life’s injustice, Arno's smile remains. His smile is an
eternal memory of a premature flight.
ABOUT THE AUTHORS
Sonia Goerger is a medical secretary who has been welcoming and meeting many
genetic patients for several years. This inspired her to create the “Children
of Genetics” series of books for children. The books in the series deal with
the difficulties that patients may experience in their everyday lives, using
simple words and endearing characters. To bring them to life, Sonia Goerger
collaborated with Christine Juif, a clinical psychologist who assists patients
with genetic diseases and their families during the diagnostic process.
A graphic designer for several years, Elodie Garcia is an author and
illustrator of children’s books and comics. The delicacy of her line allows
her to approach, in a gentle way, difficult subjects. By illustrating the
Children of Genetics book series, she hopes to help families facing rare
diseases.
The Association for Research in Genetics and Support for Families and
Professionals of Dijon-Bourgogne (ARGAD) is a non-profit association under the
1901 law, created in September 2010. ARGAD engages in numerous activities: •
Improving reception and care conditions for patients with rare diseases in
Burgundy, within the Genetics Centre of Dijon CHU; • Raising awareness among
health professionals in the Burgundy region, and among the general public
regarding rare diseases; • Contributing to a better and improved training of
health professionals involved in rare diseases; • And, supporting clinical and
biological research activities in the field of genetic mutations associated
with abnormalities in development and intellectual disabilities in Burgundy.
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