- EAN13
- 9782493373342
- Éditeur
- Fondation Ipsen BookLab
- Date de publication
- 06/12/2023
- Langue
- français
- Fiches UNIMARC
- S'identifier
Livre numérique
-
Aide EAN13 : 9782493373342
- Fichier EPUB à mise en page fixe, avec Marquage en filigrane
0.00
Arno is an adorable little sparrow full of energy. But one day, the wind told
his parents that Arno had a disease that would take away the beautiful things
he had acquired over the years.
However, despite life’s injustice, Arno's smile remains. His smile is an
eternal memory of a premature flight.
ABOUT THE AUTHORS
Medical secretary, Sonia Goerger has been welcoming and meeting with numerous
patients regarding genetics for many years. This interaction inspired her to
create this series of books on "Children of Genetics".
The books within this collection address challenges these patients may face on
a daily basis, in simple terms and with endearing characters.
The ARGAD Association (Association for Research in Genetics and Support for
Families and Professionals of Dijon-Bourgogne) is a non-profit association
under the 1901 law, created in September 2010. ARGAD engages in numerous
activities: • Improving reception and care conditions for patients with rare
diseases in Burgundy, within the Genetics Centre of Dijon CHU, • Raising
awareness among health professionals in the Burgundy region, and amongst the
general public regarding rare diseases, • Contributing to a better and
improved training of health professionals involved in rare diseases, • And,
supporting clinical and biological research activities in the field of genetic
mutations associated with abnormalities in development and intellectual
disabilities in Burgundy. To support the ARGAD Association and its’ mission:
http://www.translad.org/
his parents that Arno had a disease that would take away the beautiful things
he had acquired over the years.
However, despite life’s injustice, Arno's smile remains. His smile is an
eternal memory of a premature flight.
ABOUT THE AUTHORS
Medical secretary, Sonia Goerger has been welcoming and meeting with numerous
patients regarding genetics for many years. This interaction inspired her to
create this series of books on "Children of Genetics".
The books within this collection address challenges these patients may face on
a daily basis, in simple terms and with endearing characters.
The ARGAD Association (Association for Research in Genetics and Support for
Families and Professionals of Dijon-Bourgogne) is a non-profit association
under the 1901 law, created in September 2010. ARGAD engages in numerous
activities: • Improving reception and care conditions for patients with rare
diseases in Burgundy, within the Genetics Centre of Dijon CHU, • Raising
awareness among health professionals in the Burgundy region, and amongst the
general public regarding rare diseases, • Contributing to a better and
improved training of health professionals involved in rare diseases, • And,
supporting clinical and biological research activities in the field of genetic
mutations associated with abnormalities in development and intellectual
disabilities in Burgundy. To support the ARGAD Association and its’ mission:
http://www.translad.org/
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